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May is Awareness Month for Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease
WASHINGTON, May 20, 2025 /PRNewswire/ -- In honor of ALS Awareness Month, I AM ALS is rallying the nation on Thursday, May 22 for a Day of Action to shine a light on the devastating realities of Amyotrophic Lateral Sclerosis (ALS), amplify the voices of those affected, and galvanize Americans around our urgency for change.
The theme "ALS is here, but so are we" invites advocates, families, and allies to share their powerful stories and take personal actions to build awareness, connection, and hope.
"On May 22, we're asking people everywhere to stand with us, speak out, and show up," said Andrea Goodman, CEO of I AM ALS. "ALS is here, but so are we. We are storytellers, visionaries, advocates, and dreamers -- and we're not going anywhere. This Day of Action is about community, truth-telling, and visibility."
ALS, otherwise known as Lou Gehrig's disease, is a progressive and 100% fatal neurodegenerative disease that affects nerve cells (neurons) in the brain and spinal cord, leading to muscle weakness, paralysis, and eventually death. Approximately 6,000 people in the U.S. are diagnosed with ALS every year. It is projected that the number of ALS cases worldwide could increase by almost 70% by 2040 (source).
About I AM ALS
I AM ALS is a nonprofit organization leading what STAT News called the most successful patient advocacy campaign this century. We built a community movement to harness collective power and find treatments and a cure for ALS faster, while also creating lasting, systemic change. Our focus is on three areas:
Learn more at www.iamals.org.
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