Changing society's perception of a certain issue isn't easy -- but it can be done. In Calgary, one non-profit is working tirelessly to challenge pervasive stereotypes about dementia.
We spoke to Kaylee Strachan, the team lead of the Dementia Support Navigators at Alzheimer Calgary, to dive further into the stigma surrounding dementia.
Strachan's job is to support those impacted by the illness -- both the people living with it and their support systems. That means she's had a first-hand account of how dementia is seen and perceived by the world.
For her, the biggest misconception she hears is that once someone receives a dementia diagnosis, their lives are over. "I often tell people who have recently received a diagnosis that it is a label that explains what they are experiencing; it does not mean they can no longer enjoy life," she tells Daily Hive.
Due to confusion or lack of awareness of the disease, many people jump to what life could be like in the end stages of the diagnosis and skip out on everything else. "It's important for people to understand there is still lots of life to live and things to enjoy," she says.
Above all, connection is of the utmost importance. All human beings want connection, and that desire does not just disappear with a diagnosis.
"Unfortunately for people living with dementia, connecting with others can become more difficult," Strachan says, and points to things like fear and misconception, which can sometimes lead to isolation.
The solution? Learn about dementia, challenge the stigma, and foster connections, ensuring that people living with dementia feel valued and included.
"Just like everyone else, people living with dementia have hobbies, histories, and passions. Digging into those things can inspire conversations and help to spark that connection," she says.
Another misconception Strachan sees is that people living with dementia can't participate in activities anymore. That's just simply not true. As with many things in life, adaptations can be made.
Strachan uses the example of baking -- where tasks like measuring or stirring can be simplified. Pre-measured ingredients, larger-handled utensils, or mixing with assistance can make the whole process more accessible. And once the batter's ready, decorating cupcakes becomes a fun finishing touch.
As society's understanding of Alzheimer's and dementia starts to shift, it's important to recognize the strengths and contributions of those living with the disease, offering them respect, compassion, and love.
In honour of that sentiment, and just in time for World Alzheimer's Day on Sept. 21, Alzheimer Calgary is hosting the Still Me Then and Now photo contest.
Designed to show that those living with a diagnosis are still themselves, participants are asked to submit photos of a loved one or friend from back in the day (just like the photos you've been seeing in this article) and one from right now, highlighting what makes them awesome.
Participating in this photo contest is a simple and effective way to support the Still Me movement and its goals.
"Too often, as people age, their individuality is overlooked. By showcasing these then and now photos, we encourage curiosity, challenge stereotypes about aging, and highlight that a person's true character remains present throughout their life," explains Strachan.
Winners of the contest will be announced at the 35th anniversary of the Alzheimer Calgary Walk and Run, where more than 2,000 Calgarians will come together to support the people and community they love.
It's all about honouring the incredible lives of our loved ones, their characteristics, and their personalities.
As Strachan puts it simply and effectively, "dementia does not define a person's life. They are still able to contribute to their communities and engage in life."